Even in the absence of my blog posts, we have been overwhelmed and awed by the love and support that have been poured out as we travel this journey with Noah.
Noah remains in the the pediatric intensive care unit on a ventilator. His MRI on Friday revealed that the damage from the leukodystrophy has extended into his brain stem... an area of the brain that controls involuntary functions like respiration. This was not entirely unexpected, but the speed with which the disease has spread surprised even our pediatric neurologist, who has been seeing Noah since March.
Noah, while stable, is still a very sick little boy.
We continue to covet your prayers for wisdom and peace and comfort.