Two weeks ago today we took Noah to the emergency room. I don't think Josh or I expected that he would still be in the hospital today.
Our conversation with the doctors yesterday was hard but informative. They gave us two options of treatment for Noah... both difficult, both requiring a leap of faith.
For now, we have decided to let our little guy rest and recover from all that has happened over the last 14 days. He is finally receiving food again via his g-tube (really only the second time he is being fed in these two weeks) and the ventilator is helping him breathe (although he is showing evidence that he can do it on his own when he wants to). Our plan is to give him several days to work back to full strength and then reassess. We also are requesting another MRI... hoping to gain additional information about what is going on in Noah's brain that might be causing his problems with breathing (it is very easy for the doctor's to blame everything on Noah's leukodystrophy but we would like a little more data).
Please pray that we would have wisdom, perseverance, patience, and strength. Please pray that Noah, more than anything else, would prove to the doctors that he is willing to breathe on his own without the ventilator.
PS... We are without any laptops at the moment as they are being repaired at the Apple Store. And, unfortunately, I can't seem to post to the blog from Josh's phone. So please be patient with my updates.
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23 comments:
I am praying for the three of you and for the doctors. I am so sorry the answers are too slow in coming. The Lord knows your sorrow and he has a plan. I will continue to pray throughout the day. Thank you for the update.
I have been reading about your journey recently and am in prayer, alongside so many others, for little Noah. You ALL are loved... Leslie
Prayer and Peace.
You will have the strength and God will guide your decisions.
You guys are amazing!!
Lynn
Had you guys on my heart all day yesterday. Praying. Praying. and more praying.
So glad to see your post to know how to pray. Patsy
You all are in our thoughts and prayers during this decision time!
Jeremiah 29:11
Proverbs 3: 5-6
My prayers are with you for your sweet son. My heart goes out to you for everything your family is dealing with.
Thinking of you.
Josh and Deb,
My family and I continue to pray each day. I continue to be blessed by your faith, courage, and strength. We will continue to pray for answers, for strength and courage to continue in Noah, and for that sweet boy to breath on his own. You are all loved!
Kim
Icontinue to pray and hold you all close in my heart. Try to rest in the Lord, he has all the answers and He will guide you in your decisions and be your pillar of strenth. He loves you and so do we.
May the Lord restore you all as you rest. Continued prayers for you and the doctors caring for Noah. Much love coming your way from all three of us.
praying for doctors wisdom, your voices to be heard, and strength for your little man. love ya'll.
Try to let go
and let GOD.
Hugs........
Know that our prayers are with you and Josh, Noah, and the many hands that care for your precious baby boy. Peace.
You know me...I can't read your entries without my eyes filling with tears--but so many of the tears are because of the beauty you and Josh display daily in your love for Noah. What examples you are to all of us who have been blessed by you! Lots of prayers are covering you!
Praying..for rest and energy for all of you physically, emotionally, spiritually...just peace surrounding the Lauers.
becky canatsey
Our prayers go out to your family.
We serve a might God who can move mountains. I know that He has your family in his hands. I pray that your family will be able to feel His love and touch and find rest, peace and comfort.
Just thinking of you.
hey, I know I was just down there talking to you, but I really want you to know how proud I am of the decision you've made. I know it is very very hard and most parents can't do it. The only way to explain it is God. He is definitely guiding you and giving you both strength. Please continue to pull strength from him! You are an awesome family and I have really enjoyed what little bit I've been involved in your stay here! I am constantly praying for all of you. If there is anyway that they'll let me come in this weekend I will be here but it's not looking promising at the moment. I have filled one of our other therapist in and she is awesome and a believer also. I am wishing you guys the absolute best.
Checking in to let you know how much I'm thinking of you. Praying for you and your baby. Whatever decisions you're having to make, I'm sure the Holy Spirit is right there with you, guiding you. I won't stop praying.
I'm praying for you tonight.
This is a link to the devotional we read tonight. http://www.rbc.org/odb/odb.shtml
You are in our prayers and hearts daily.
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