Another really long day...

I am writing from the cafeteria at St. John's hospital... forcing myself to eat while a sweet friend keeps watch over Noah.  My body and my mind are exhausted.

Noah had several tests done today... but the low point came long before any of the tests.  The nurses had an extremely difficult time getting in the IV and eventually had to use a vein in Noah's adorable little head.  Mercifully, Josh's mom encouraged me to leave the room while they were making their attempts so I didn't watch them stick him repeatedly.  When I came back into the room, he was as mad as I've ever seen him, but he settled down once he was snug in my arms.  

Amazingly, Noah has been a pretty happy camper throughout the day.  He has been cooing and playing with his favorite bug (picture to follow later) and has slept pretty well in spite of the chaos going on around him.  We were moved out of the pediatric ICU this afternoon and into a shared room... not the ideal situation but one in which we will have to push through.  

Josh and I continue to remind each other that we must take this one day at a time ...